Enhancing post-diagnostic support in UK rural areas

Funded by the National Institute for Health Research, Clinical research Network, south west Peninsula
Countryside town in the sunshine. Credit: Dr Nicolas Farina
Credit: Dr Nicolas Farina 
Project overview
Led by Dannii Bilkey (Cornwall Partnership Trust NHS Foundation Trust) in collaboration with Dr Nicolas Farina (University of Plymouth), Dr Ben Hicks (Brighton and Sussex Medical School) and Prof Sube Banerjee (University of Nottingham), this research project aims to investigate the post-diagnostic support available to individuals with dementia in rural areas across the United Kingdom. By understanding the unique challenges faced by people with dementia, caregivers, and healthcare professionals, we seek to improve the quality of care and enhance the well-being of those affected by dementia.
Key objectives
  1. Exploring experiences: We will delve into the lived experiences of individuals with dementia and their families. This includes understanding their needs, preferences, and gaps in existing support systems.
  2. Identifying barriers: By analyzing data from various sources, we aim to identify barriers that hinder effective post-diagnostic support. These may include geographical, cultural, or resource-related challenges.
Methodology
Our systematic review will utilize databases such as SCOPUS and PubMed. We will apply the Candidacy Framework, which considers factors influencing access to care. By synthesizing evidence from qualitative and quantitative studies, we hope to gain comprehensive insights.
Impact goal
The findings from our research will inform the development of tailored interventions for dementia care in rural communities. By bridging gaps and addressing specific needs, we aspire to enhance the overall well-being and quality of life for those living with dementia.
Funder
This project is funded by the National Institute for Health Research, Clinical research Network, SW Peninsula.
Publications
Bilkey, D., Farina, N., and Hicks, B.  (2023). Dementia post-diagnostic support in UK rural communities: experiences of people living with dementia, informal caregivers, and healthcare professionals. A systematic review protocol. protocols.io. https://dx.doi.org/10.17504/protocols.io.81wgbxrdylpk/v1.