Experts from around the world are gathering at a conference today to set out the latest research and innovative treatments for Hyperemesis Gravidarum (HG).
Led by University of Plymouth PhD student Caitlin Dean, who is also chair of charity Pregnancy Sickness Support, the International Colloquium on Hyperemesis Gravidarum is taking place at Windsor Racecourse.
Despite recent growing public awareness, evidence suggests many women in the UK are still being denied safe, effective treatment to alleviate their symptoms.
HG has historically been under-researched and under-funded, in part as a result of the Thalidomide disaster of the 1950s. The profound effects it can have on women and their families have not been sufficiently recognised amid perceptions that it is 'just' morning sickness which will pass.
While treatment guidelines and public awareness of the condition have improved over recent years, in part due to the Duchess of Cambridge suffering from the condition in her pregnancies but also due to a concerted effort by researchers and charities, evidence from the charity Pregnancy Sickness Support (PSS) suggests that around half (53 per cent) of women have difficulty accessing treatment for their condition, which can lead to dehydration, malnutrition, and hospitalisation.
Moreover, experts will today warn that HG also has a profound effect on women’s mental health – potentially extending beyond their pregnancies - stressing the need for a shift in clinical treatment to incorporate psychological support.
Researchers will highlight evidence that HG can lead to social isolation, in part due to stigma and fear of humiliation if symptoms arise while in public, depression, anxiety, and even thoughts of death and suicide. Women’s mental health can also be affected by loss of earnings or employment caused by HG.
There is no known cure for HG, although there are safe treatments which can alleviate symptoms for some women. The exact causes are also unknown, but researchers speaking at the conference are actively pursuing the genetic link which they hope will one day enable clinicians to predict women’s likelihood of developing HG, and also enable the development of new treatments for the condition.
PSS Chairperson and conference organiser Caitlin Dean said:
“Care and treatment options for Hyperemesis Gravidarum (HG) has improved massively in the last few years and research into the condition is finally attracting attention and tentative funding. Research to be presented today demonstrates the mental health effect of this condition can be profound and doesn’t always end when the baby is born but can persist for years after. Women can become severely depressed and even suicidal from months of isolation and the torture of the condition. HG can limit families and alter the trajectory of a woman’s life.”