Fitness tracking, supermarket reward points, going to the doctor… every day we generate a massive amount of data.
Data like this can be used in research that makes a positive difference to our lives, like finding cures for diseases or improving public services. Yet, how that data is gathered, how access to it is managed, and how it is used makes all the difference in building, and maintaining, public trust. Without public trust and involvement, data research can fail to reach its full potential.
January 2025 saw the launch of the Public Engagement in Data Research Initiative’s (PEDRI) Good Practice Standards. Co-created with professionals and the public over a two-year period, they help the data research community to work well with the public, providing a framework to build transparency and inclusion into the research process.
Hear from those involved in developing the Standards including Shayda Kashef (Senior Public Engagement Manager, ADR UK), Piotr Teodorowski (Health Services Researcher, University of Stirling) and Jan Speechley (PEDRI Public Partner) in conversation with Anna Woolman (Community Engagement Lead, PEDRI) to find out how can we make sure the public voice shapes the way data is used. With introductions from Doreen Tembo (Strategic Lead, PEDRI) and Samaira Khan (Operational Lead, PEDRI).
This is the first event of our PEDRI webinar series.
If you have any questions or concerns, contact us at contact@pedri.org.uk.
Speaker biographies and registration on Eventbrite
This event is promoted by the NIHR INSIGHT South West Peninsula programme and will be of interest to our INSIGHT student cohort as well as the wider community of those in the early stages of their research careers.