Professor Cooper added:
“I am excited that QMUL is co-leading with the University of Plymouth this national partnership across academic, clinical and lived experience organisations, with its ambitious commitment to drive up the quality of prevention, treatment and care services across dementia and neurodegenerative diseases. We will work with DHSC to build the evidence base policymakers need to drive more integrated, equitable, user-focused services. We will look especially at how services can be developed so that groups they currently serve less well can benefit equitably from scientific advances.”
Around 885,000 people in the UK live with dementia, and without major change in the availability of preventive strategies, this number is expected to double within 25 years.
The costs of dementia in the UK, currently mostly attributable to social care, will also increase from £23 billion in 2015 to an estimated £80.1 billion in 2040.
The new DeNPRU will work with policymakers to produce research that answers four key questions on dementia and neurodegenerative disease:
- How policy can help prevent these diseases by addressing risk factors;
- How to improve people’s experience of a diagnosis and ensure good quality ongoing care for everyone;
- How technology and the way services are provided can support everyone with these diseases to receive care designed to meet individual needs;
- How to build a workforce with the right skills and positive attitudes towards people with these diseases.
For each question, the team will address how to deliver fairer, inclusive services to reduce inequalities, how social care can support people to live the lives they want to lead beyond medical care, how to conduct research serving all communities, including involving those with lived experience, and how to provide the best value for patients and society.
The DeNPRU team also includes collaborating researchers from University College London; the Universities of Exeter, Newcastle, Plymouth, Liverpool, and York; Meri Yaadain CiC; Dementia UK; and Neurological Alliance.
It is also working in partnership with the Alzheimer's Society, and together this group draws on broad experience in deprived inner city and coastal areas right across the UK.